Dec 11, 20216 minA Christmas Gift Guide for That Special Girl With Rett Syndrome We’re just two weeks away from the big day. How did it creep up on us so fast again, right? But you know what? I’m ready for it this...
Oct 29, 20215 min29 Days of Purple... and I'm Exhausted!Today is Rett Syndrome Awareness Day, but I'm exhausted. For me... EVERY day is Rett Syndrome Awareness Day. And it never gets easier.
Jan 20, 20214 min2021 Twenty: Figure Out Kindergarten Transition for My TwinsIt is devastating for me to realize that in June five years will have passed since my twins were born. As I mentioned in previous blogs,...
Dec 2, 20202 minMagnolia’s HopeLast night Lisa and I watched "Magnolia's Hope", an intimate documentary about a little girl with Rett Syndrome much like Madison. A lot...