6 days ago4 min2021 Twenty: Figure Out Kindergarten Transition for My TwinsIt is devastating for me to realize that in June five years will have passed since my twins were born. As I mentioned in previous blogs,...
Jan 132 min2021 Twenty: Learn 100 Words of Sign LanguageEvery Tuesday is speech language therapy day around here. If you've been following my families journey, you should know that Ethan has A...
Dec 3, 20202 minMagnolia’s HopeLast night Lisa and I watched "Magnolia's Hope", an intimate documentary about a little girl with Rett Syndrome much like Madison. A lot...
Jan 16, 20206 min2020 Twenty: Become an AdvocateI've seen this day approaching now for a couple of months. Today, January 15th is our D-Day for Madison. D-Day is the diagnosis day for...
Oct 3, 20191 minHow Did I Know?For the first year of her life, Madison progressed normally, albeit slightly slower than her younger twin brother Ethan. But we thought n...
Oct 2, 20191 minWas Madison BORN With Rett Syndrome?Madison was born on June 1, 2016 (five weeks early) and was first known as “Twin A”. Two minutes later, her twin brother was born. Both M...
Oct 1, 20191 minRett Syndrome Awareness MonthOctober is Rett Syndrome Awareness month so in support of that, Madison will be taking over my social media accounts and blog for the ent...