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    A Christmas Gift Guide for That Special Girl With Rett Syndrome
    • Dec 12, 2021
    • 6 min

    A Christmas Gift Guide for That Special Girl With Rett Syndrome

    We’re just two weeks away from the big day. How did it creep up on us so fast again, right? But you know what? I’m ready for it this...
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    29 Days of Purple... and I'm Exhausted!
    • Oct 29, 2021
    • 5 min

    29 Days of Purple... and I'm Exhausted!

    Today is Rett Syndrome Awareness Day, but I'm exhausted. For me... EVERY day is Rett Syndrome Awareness Day. And it never gets easier.
    1 comment
    Today Was IEP Day
    • Oct 21, 2021
    • 2 min

    Today Was IEP Day

    What are your greatest strengths? How about your weaknesses? Often we only think of these questions when we’re preparing for an...
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    2021 Twenty: Figure Out Kindergarten Transition for My Twins
    • Jan 21, 2021
    • 4 min

    2021 Twenty: Figure Out Kindergarten Transition for My Twins

    It is devastating for me to realize that in June five years will have passed since my twins were born. As I mentioned in previous blogs,...
    0 comments
    2021 Twenty: Learn 100 Words of Sign Language
    • Jan 13, 2021
    • 2 min

    2021 Twenty: Learn 100 Words of Sign Language

    Every Tuesday is speech language therapy day around here. If you've been following my families journey, you should know that Ethan has...
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    Magnolia’s Hope
    • Dec 3, 2020
    • 2 min

    Magnolia’s Hope

    Last night Lisa and I watched "Magnolia's Hope", an intimate documentary about a little girl with Rett Syndrome much like Madison. A lot...
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    2020 Twenty: Become an Advocate
    • Jan 16, 2020
    • 6 min

    2020 Twenty: Become an Advocate

    I've seen this day approaching now for a couple of months. Today, January 15th is our D-Day for Madison. D-Day is the diagnosis day for...
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    How Did I Know?
    • Oct 3, 2019
    • 1 min

    How Did I Know?

    For the first year of her life, Madison progressed normally, albeit slightly slower than her younger twin brother Ethan. But we thought...
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    Was Madison BORN With Rett Syndrome?
    • Oct 2, 2019
    • 1 min

    Was Madison BORN With Rett Syndrome?

    Madison was born on June 1, 2016 (five weeks early) and was first known as “Twin A”. Two minutes later, her twin brother was born. Both...
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    Rett Syndrome Awareness Month
    • Oct 1, 2019
    • 1 min

    Rett Syndrome Awareness Month

    October is Rett Syndrome Awareness month so in support of that, Madison will be taking over my social media accounts and blog for the...
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