Magnolia’s Hope

Last night Lisa and I watched "Magnolia's Hope", an intimate documentary about a little girl with Rett Syndrome much like Madison. A lot...

2020 Twenty: Become an Advocate

I've seen this day approaching now for a couple of months. Today, January 15th is our D-Day for Madison. D-Day is the diagnosis day for...

How Did I Know?

For the first year of her life, Madison progressed normally, albeit slightly slower than her younger twin brother Ethan. But we thought...

Rett Syndrome Awareness Month

October is Rett Syndrome Awareness month so in support of that, Madison will be taking over my social media accounts and blog for the...